What is Stephanie Romer Hlhs email address?

Stephanie Romer Hlhs's primary email address is *********@projectheart.org. To view the full verified email and additional contact details, sign up for free with Muraena.

What company does Stephanie Romer Hlhs work for?

Stephanie Romer Hlhs is a Patient Advocate at Johns Hopkins All Children's Hospital.

Where Stephanie Romer Hlhs graduated from?

Stephanie Romer Hlhs holds a degree in from The Ohio State University.

How can I directly contact Stephanie Romer Hlhs?

To contact Stephanie Romer Hlhs directly, you can use the email address *********@projectheart.org. Complete contact information is available upon registration with Muraena.

Who is Stephanie Romer Hlhs?

Stephanie Romer is a remarkable individual who has turned her personal challenges into a powerful advocacy platform. As one of the oldest living survivors of Hypoplastic Left Heart Syndrome, she shares her journey through her memoir, 'Quieting the Clock: Memoir of A Girl Facing Death and Chasing Freedom'. With a wealth of experience in coaching, child advocacy, and motivational speaking, she promotes mental health and psychosocial development for children with congenital heart disease. Stephanie's mission is to empower families and communities to support chronically ill children, drawing from her own life experiences and extensive research. She has worked with various organizations, including Johns Hopkins All Children's Hospital and the Adult Congenital Heart Association, to raise awareness and provide resources for families affected by congenital heart defects. Her unique perspective as both a patient and an advocate enriches her contributions to the field.